One more visit to the ER

Last Sunday Ricki wasn't feeling well but I talked her into going to church anyway. Once at church she put her head on my lap like she usually does when she isn't feeling well.  Her nose started draining a watery substance and wouldn't stop so we had to leave. It stopped after a little bit but Ricki was just not feeling well.  She had some behavior changes and was acting funny and went and laid down under the kitchen table.  I determined it was because she was so frustrated because she wasn't feeling well. The rest of the night she was pretty miserable. It is so frustrating because I never know for sure when to take her in. I emailed our neurosurgeon and asked him what we should do.  He emailed back on Monday and was concerned it was a csf leak and we needed to watch her carefully. She still did not feel well on Monday and it began to drain in the afternoon so I called to see if we could get her into the dr and they told us to go to Instacare. Once we were at Instacare we waited and then when it was our turn they asked what they were seeing her for and when I told them she went and talked to the drs and came back and told us they couldn't help us.  So frustrating! On the way home our geneticist emailed about something else so I emailed him and he suggested we collect a sample. By the time we got home her nose wasn't draining much.  Then Tuesday we got another email from our neurosurgeon explaining that if it was a csf leak we needed to get it checked. Even though Ricki had a pretty good day we decided to take her in to Primary's to get her checked so if she was ok we wouldn't be worrying over the holiday. They were so sweet at Primary Children's. She had a small amount of leaking but not enough to collect while we were there. They did a ct scan and didn't find anything. They seriously considered doing a lumbar drain on her but we were grateful they determined to wait and watch so we could try to be home for the holidays. She perked right up and was pretty excited over that news!  We have felt the prayers in her behalf and she has done so well the last few days. She had a pretty sever headache Christmas Day but we were able to keep it manageable with some of her medicines. We are so grateful for the miracles we have seen  this Christmas. We are grateful for all the blessings of the faith and prayer of all our family and friends.