Last doctors appointments for 2015

Our appointments yesterday took all morning and we were in the doctors offices for what seemed like forever.We left for Salt Lake around 6:30 a.m. The first appointment was with Dr. Visckochil our geneticist. He is our Neurofibromatosis Type 2 (NF) specialist. We appreciated all the time and care he took going over Ricki's MRIs and trying to figure out  the head aches, the bumps on her head, and the abdominal pains.  He told us it was actually unique that with the small percentage of cells that carry the genetic mutation from the genetics testing for Ricki to have such a large number of tumors. He ask for permission to visit with other NF specialists to see if they had some experiences similar to Ricki's.  Even though we didn't come away with any answers it is comforting to have wonderful doctors trying to help us. Even though it was time for our next appointment we stopped and visited with Kelly Carpenter - who is the chair person over our area NF group. She got things put together for Ricki's warrior bead necklace wich was fun for Ricki. Next off to our Neurosurgeon Dr. Bollo. Dr. Bollo was not sure why Ricki was having the bumps and didn't seem too concerned. He did say he thought that her abdominal pain could very well be caused from some of her tumors on her spine. He thought it was nerve pain and that if it were the pain could be managed with a nerve pain medication. We thought we might try it if they don't find anything when they scope her stomach. Ricki's left arm is also painful and her toes are numb...which could also be managed by the same medicine. I hesitate to start her on medicine so young..we will just have to wait and see. The last thing he mentioned was that they were still watching the tumor in her chest closely.. Dr. Viskochil requested a tumor review with the radiologist,neurologist,dr. Bollo and himself along with some others to closely review Ricki's case and make sure they weren't missing anything. That will probably happen in April after her next MRI. All in all a good way to finish of the year 2015 with such caring doctors!