As we begin a new year we are so grateful for the wonderful hospital staff and doctors that have cared for Ricki since her diagnosis of Neurofibromatosis Type 2. Today we watched again that same care and kindness as she went in for an EGD ( scope of her stomach). She has been having stomach pains and nausea daily for about 3 months. They did the scope to check for tumors in her stomach and we were excited they did not find any evidence of tumors. It still doesn't explain the pain but we can eliminate that possibility. She had a wonderful anesthesiologist..I think it was a dr. Clark. She is a little tricky to work with because of her vocal chord reintrvention and he took great care in protecting her vocal chord and didn't even complain of a sore throat!
So... Back to her stomach pains - Her neurosurgeon Dr. Bollo thought there was a possibility that it is being caused by some of her tumors on her spine and gave her a prescription for Neurontin ( a nerve pain medicine) it hasn't helped yet but we are still hopeful.
We were just finishing up the night when she discovered another bump on her left forehead..she has been getting them off and on since the middle of October. They just show up and go away usually within a day. When we went to our geneticist last month he told her she was a puzzle. We have laughed because later she said to us"I wish I were just a 5 piece puzzle instead of a thousand piece puzzle" She is such a sweetheart.
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