Friday, November 1, 2013

Halloween 2013

Since Ricki's diagnosis of NF2 in May there have been some long nights that seemed to never end and then there have been some that come to an end too quickly. Halloween morning 2013 seemed to come way too quickly. We were to be at the hospital at 6:00 a.m.  We had stayed the night at the Ronald McDonald House so we didn't have much of a drive to get there.  Upon arriving at the hospital we were one of the first ones there.  In no time we were checked in and the nurses had Ricki ready and then we waited.... Dr. Bollo then Dr. Shelton came and visited with us. When Ricki's nurse for surgery came we were all relieved to see it was the same nurse she has had for the last  two surgeries that came around 7:30 ....   iIt didn't make the goodbyes any easier knowing that even after a successful surgery Rickis life would be a little different than before. The next time we heard from the nurse was around 9:30. They had started the surgery. We had an update around  noon letting us know they were working slowly and meticulously.... Upon completion of the surgery We missed seeing Dr. Shelton because we had slipped down for lunch but were able to get the Good News from the surgery from Dr. Bollo around 2:30.  They had removed the tumor in her canal but had seen some signs of other very small tumors. After exploring further they found 2 more small tumors.  What a miracle it is to have such amazing doctors and the technology that allows them to work on such a small and intricate part of our body.  Her facial nerves responded through the whole surgery. They also monitored her hearing.   The response was strong at first but weakened as the surgery progressed.  We will have to wait to see the results of her hearing.  Ricki has been strong as she has been faced with pain, dizziness, and nausea.  She has been determined to not use morphine and the nurses have been awesome in helping her to control her pain without it.  She has been sleeping through the night.  For me it has been one of those nights that didn't seem to end.  We have a sweet baby next to us that has had a rough night.  It has brought back memories of the first night we spent here at Primary children's when Ricki was life flighted here. That night was also a long night of not knowing what the outcome of things would be for our sweet daughter.  That night we were also next to a sweet baby that was having a rough night.  As I pondered on where we were that night and where we are with Ricki tonight, it has filled my heart with gratitude for the many miracles and tender mercies I have seen and experienced over the past 6 months.  Though it has not been easy at times we have been blessed with a peace and assurance that we have a loving Heavenly Father who has a plan for each of us,  There are things we each individually need to learn and grow from  so that we may return and live with our Heavenly Father someday. I am reminded of a primary song the children at church sing.  

My life is a gift.  My life has a plan.  My life has a purpose in heaven it began. My choice was to come to this lovely home on earth and seek for God's light to direct me from birth.  I will follow God's plan for me. Holding fast to his word and his love. I will work, and I will pray, I will always walk in his way, then I will be happy on earth, and in my home above.

Although it has been a long night it has been a sweet night.  I am grateful for this time to ponder on the blessings of life.   What a fitting way to begin November with so much to be grateful for!

Wednesday, October 30, 2013

Ricki's Heroes

Yesterday we went to Primary Children's hospital for some pre-op stuff. Then, to finish off the day we spent the evening at temple square. Ricki had her picture taken with some of her heroes. She is my hero!  I learn so much from her sweet smile and sense of humor as she faces her challenges. 

Friday, October 25, 2013

The Magic of Disneyland


Disneyland was the best medicine! It was truly magical!  It was so wonderful seeing Ricki laughing and screaming in delight as she went on the rides.  What a blessing that we were able to get away from it all for a few days and leave our cares behind.  It was a magical experience.  Ricki's health hadn't been great and we were beginning to wonder if we should even go. In addition to her stomach,back, head and chest pains that she had been having for awhile she had began to have severe stabbing pains in her leg.  Ricki handles it all with such patience, grace and determination I am amazed at her inner strength.  She insisted that she was going to be o.k. at Disneyland, and she was.  We put her in a wheelchair and she did pretty good.  I could tell several different times that she was not doing well but she would insist she was o.k... And she hung in there and made it two days at Disneyland!

Angels among us.



 "
We have been so very blessed. It seems wherever we are, Ricki is blessed and touched by the love and kindness of many. A few weeks ago we were blessed and inspired by a visit to her grandma Jensen.  What an example of faith and perseverance she is.  She can't see yet she still lives alone at her home. You never hear her complain...she just talks about all the blessings in her life.  We are also blessed wherever we go. Frequently at the store we get talking to someone and they tell us they are praying for Ricki. We have felt an outpouring of love and concern. Recently, when we went to California we were again blessed. Family of friends went out of their way to ensure that Ricki had a wonderful time at Disneyland.  We had tours of some of Disneyland. We were given help getting fast passes to some of the rides.  One Angel didn't even know us. We went on our first ride and the cast member in charge was Sooo good to Ricki!  He treated her like a princess.  The second day at lunch Ricki requested we try to ride 3 specific rides to finish off the day.  On our way to the second one we determined we didn't have time for the third.  When we arrived at space mountain ..there was our favorite cast member! It was the same person who started off our Disney adventure with a bang! We were all excited to see him.  When we were getting off the ride there he was again!  We soon discovered he had had come looking for us. He had a front of the line pass!  Ricki was going to make it on all her rides!  Some may call iit luck..but to us he was an angel! 

Wednesday, October 9, 2013

Halloween at Primary Children's Hospital

Well...to those who were wondering when my next surgery is, it is officially scheduled for Halloween. So they are cutting open my head again...but at least it's not from ear to ear this time. 



Thursday, September 26, 2013

Taking a Break

We have enjoyed having a break from the doctors and hospitals..Ricki is enjoying being back in school.   She is an inspiration to us all with her smile and quiet determination. 

We got permission from her doctors to postpone her next surgery. We want to take a trip over fall break.  Ricki has never been to Disneyland and wants to go there. She had a few small seizures this past weekend so we are trying to figure out which Disney attractions will work the best for her. 

We continue to love her sweet countenance and are inspired with her determination to have a positive attitude and cheerful countenance. Thanks you for all the prayers in her behalf. There are definitely days When the blessings are easy to see. 

Friday, September 6, 2013

A first since May 2013

Yesterday we took Ricki to Salt Lake for a follow-up from her surgery. Dr.Smith is so sweet and kind to Ricki...not many doctors come and meet you in the waiting room and walk you back themselves! He said her throat was looking and sounding good. Ricki was thrilled because she didn't have to have the camera through her nose.  The best thing is something we haven't heard from a doctor since we started this adventure...."we will see you in 6 months"