Summer update

My intent in May was to share what we had learned about NF2 this past year. Surprisingly with it being the year anniversary of Ricki's first brain surgery I found it more difficult than I had anticipated to recall what we had been through this past year. The hardest part of it all is that there is no cure.  We are at the mercy of her tumors...how fast they decide to grow and how they affect her.  

After a crazy year however, we are looking forward to a break. We were excited and relieved to hear the news from her neurosurgeon that we have no more urgent matters to deal with.  Ricki is excited to get back to school and to worry about the normal things teenagers worry about.  She still suffers from frequent pains and headaches and we are trying to figure out the best ways to manage her pain.  We are also looking into the accommodations she will need at school to have a great school year.  

Ricki has been challenging herself and her strength and endurance is slowly returning. She is looking forward to attending an NF camp in a few weeks.  So all in all it will be a funner summer than last year!