Saturday, July 26, 2014

One more surgery

Shortly after the last post we took Ricki to a plastic surgeon at Primary children's hospital.  She had 3 tumors in her skin. Two on her face and one on her leg.  The two on her face have been growing and causing some discomfort for Ricki.  The dr. explained that to remove these tumors it is better to remove them while they are small.  He said it is like cutting a hole in a piece of fabric...it is easier to sew shut a small hole than a big hole in the fabric.  The bigger the hole the more puckering of the skin when they sew it up. We scheduled the surgery for late August but there was a cancellation on July 12 and we were excited to have the surgery done before school started. They removed the 2 tumors from her face but left the one on her leg because it was so large and the skin wouldn't  stretch very well there. The surgery went well.  They used a product like super glue to seal it instead of stitches so there would be less scarring. It turned out to be purple glue! Ricki was not thrilled about the purple on her face but it came off after 2 weeks and it is looking great.  We just have a couple more dr. appointments before school and  then....officially and hopefully we will begin a break from the doctors until November/December when she is scheduled for her next MRI and hearing tests.  So we are crossing our fingers at the possibility of going 2-3 months without a dr. appointment.  

It is hard to explain all the emotions but do wish there were a cure or better treatments for all those with Neurofibromatosis. There has to be a better options than watching and waiting till the tumors cause hearing loss,vision loss, paralysis and pain. 

We have been so blessed in our Journey with Ricki.  We have been strengthened and supported with much love and kindness. Thank you for all the kindness and prayers in Ricki's behalf.  







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