After our appointment with Dr. V we had a Spirometry test done to get a baseline of her lung function. It came out within normal limits but did show a slight obstruction in her lung function.
Next were hearing tests. Her hearing continues to remain stable in her good ear which we are so grateful for!
Following that last week she had a searies of MRI's. She has been in a great deal of pain and did not feel that she could hold still for the whole time so she had general anesthesia for her MRI. When the anesthesiologist spoke with her before he asked of there was anything he could do to make it more comfortable so she requested something for the pain before they finished. When she woke up and I let her know her sister Angie was there she opened her eyes smiled and said "yo, what's up." It was delightful to have her wake up in a cheerful mood.
We received confirmation that they are planning on seeing us at Johns Hopkins at the end of the month. We are excited to get some opinions from NF2 specialists to know what route we should take to help Ricki with all the pain she has been experiencing lately. She normally is pretty optimistic but it has been wearing on her so we are hoping for some fresh perspectives and ideas on how to help her.
Tomorrow Dr V meets with the tumor board to review Ricki's case. The tumors in her chest have a slow but steady growth pattern so it will be interesting to get their perspective as well.
No comments:
Post a Comment