Big week!

   We have a big week ahead! We are so excited! We had the opportunity to meet Dr. Blakely at an NF conference and she was so sweet and kind to Ricki. Ever since, we have wanted to work with her in trying to figure out what is going on with Ricki. This week our dreams are coming true and we have our appointment with an NF2 specialist Dr. Blakely in Maryland. We have high hopes that Dr. Blakely can give us some answers or avenues to improve Ricki's health and ability to function. Our hearts have been breaking for Ricki. She has been in a lot of pain this week. Ricki has never been much to complain about her situation. She lets us know she is in pain but never complains or cries about her life.... Until this past week. She is tired of being in pain, not feeling well, and not having the energy to do much. Just getting ready for the day wears her right out and she  needs to rest. It breaks our heart to see her eyes tear up in frustration. We are feeling so blessed with this opportunity. We are so blessed by the love and support of many and recognize there have been many miracles that have transpired since we began this NF2 journey with Ricki. Thank you to everyone for the  love support and prayers - we couldn't do it alone.