Saturday, May 11, 2013

Family Update


After being admitted into the ICU, Ricki has been able to finally eat and rest. She has loaded up on slushies and all kinds of good food. Before she got her feast, Ricki was a huge HUGE trooper and sat through a two hour CT scan that scanned her whole body for tumors similar to the one in her brain and shoulder. The amazing doctors at Primary Childrens have been able to team up and diagnose Ricki with a rare genetic disorder called FR-22, which is a genetic disease that generally passes through genes but at times can spontaneously manifest itself in an individual who does not have any known family history of it.  FR-22  causes a type of cell to reproduce without the correct regulation which leads to abnormal growths or tumors in areas along the central nervous system and brain.  They have not grown very rapidly in Ricki’s case. The good news is that the tumors are not cancerous right now, and they are currently benign. The other good news is that if Ricki responds well to the oral anti-seizure medicines given to her, she will be able to go home tomorrow (Sunday, May 12th), and will be able to stay there until the operation, which has been tentatively scheduled for Thursday (May 16th). 





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