NF Awareness Month

Today begins NF awareness month.  If someone would have asked what Neurofibromatosis or Neurofibromatosis type 2 was the 1st of May a year ago our response would have been  "n"what? I remember the first time we heard it was at Primary Children's hospital.  Ricki had been life flighted there because of her seizures and the discovery of the tumors in her brain and chest.  We had a sleepless night worrying what was in store for our sweet daughter.  The neurosurgeon came and took my husband and I into another room to tell us the news.  The atmosphere was solemn.  I don't remember much of the conversation except that it wasn't cancer and felt such relief.   However, we still had a lot  ahead of us with different challenges and heartaches with no cure and many, including ourselves that didn't know about nf2. 

This month to raise awareness of Neurofibromatosis we celebrate our  life with Ricki and will be  sharing what we are learning about Neurofibromatosis.