Thursday, September 26, 2013

Taking a Break

We have enjoyed having a break from the doctors and hospitals..Ricki is enjoying being back in school.   She is an inspiration to us all with her smile and quiet determination. 

We got permission from her doctors to postpone her next surgery. We want to take a trip over fall break.  Ricki has never been to Disneyland and wants to go there. She had a few small seizures this past weekend so we are trying to figure out which Disney attractions will work the best for her. 

We continue to love her sweet countenance and are inspired with her determination to have a positive attitude and cheerful countenance. Thanks you for all the prayers in her behalf. There are definitely days When the blessings are easy to see. 

Friday, September 6, 2013

A first since May 2013

Yesterday we took Ricki to Salt Lake for a follow-up from her surgery. Dr.Smith is so sweet and kind to Ricki...not many doctors come and meet you in the waiting room and walk you back themselves! He said her throat was looking and sounding good. Ricki was thrilled because she didn't have to have the camera through her nose.  The best thing is something we haven't heard from a doctor since we started this adventure...."we will see you in 6 months" 

Monday, September 2, 2013

Update from mom

We apologize for not posting for awhile. Ricki has just needed a break from it all. So here is a quick update of what has been going on...We took a much needed vacation to California and saw parts of California we had never seen before that were absolutely beautiful. 

August 16th she had another surgery on her vocal chord to connect the left vocal chord to a new nerve to get it working again.  The surgery was successful and she bounced back quickly.
August 20th she turned 15! 
August 22nd she started school. We are so proud of her! Even though it is very tiring she keeps going.
August 24th we checked out the NF walk in Salt Lake. We had a lot of fun and will be inviting everyone to join us next year! 
Two weeks ago Ricki began having some severe stomach and back pains and then last week she began having ear aches. We have been to the ER and Insta-Care with no solutions for her pain. She is such a trooper through it all.
We are currently waiting on our ENT surgeon and neurosurgeon on when Ricki's next surgery will be.  

Thank you for all of your prayers in Ricki's behalf.  I have seen your prayers answered at different times when I have seen a peace and a calm come over her, when the doctors or nurses are inspired to know what Ricki needs, when someone calls and visits and brightens her day, and especially when she has the energy to keep going. As a mother it is difficult not being able to " make everything better." We are all learning to go forward with faith and enjoy all the miracles in our life that happen everyday.  They are evidence of God's love for each of us.